It’s interesting and some days it feels baffling that as soon as your cancer treatment is over, unless you still have cancer, of course, there is no support.
Reminds me that the medical world is so about illness and removing the illness, not about healing and continuing to live a full life in health.
You don’t talk about health, instead you call your now state, cancer free. So it’s that you don’t have cancer, not that you’re now healed.
You’re in remission, almost like you’re just waiting for the cancer to return.
Where is there a focus on wellness, on living a full life, where your illness is over and you’ve moved on to something new, different and where you’ve grown into a larger you than you were before the illness phase.
My experience is that during the treatment, I had support, I had interest from doctors and nurses, but as soon as it was over, all support stopped.
And what’s so surprising to me is that no one seemed to have any experience or even interest in how you feel afterwards, how your body is working on coming back to “normal”.
No one talked to me a bout this phase. No one seemed to know anything about issues you might have, even though treatment has ended.
I get that just because you end chemo, everything goes back to normal the next day, but it would have been helpful to, at least have had a conversation about how some people experience their recuperation (since I know it’s very different for different people).
And how about offering some after care and not just pills.
My body (hips and legs) have been hurting so much that I haven’t been able to work out, hard time sleeping and sometimes even hard to walk. For me personally this was such a let down since i was so looking forward to working out again.
That waiting has been such a let down.
Do other people experience this? Is this common? What do people do? Are there any advice from the medical community?
It’s finally gotten better though and I’m hoping that it’ll continue in this direction. Still not able to work out but less pain.
My teeth seem to have been affected. Not sure if this is from chemo or from not being able to have them cleaned until now. Hoping the dentist can tell me.
I also experienced that I lost more of my eye brows and eye lashes after treatment ended. Not the biggest thing but the hopeless feeling when you’re so looking forward to beginning to look yourself.
How come the cancer care community doesn’t seem to have any knowledge or even interest in this phase?
So clear that the focus is on being free from illness and not on being well.
I suppose I knew that already but had never had that experienced myself.